Fibromyalgia – Day-to-Day Activities We Can Struggle With


Here are a few examples:

Grooming

First, the shower:

  • It gets hot, which can make you dizzy and activate your temperature sensitivity (which in turn can lead to more symptoms.)
  • The spray of the water, for many of us, is painful to the skin at any temperature, thanks to a symptom called allodynia (pain from typically non-painful stimuli.)
  • Standing for that long and using your arms to vigorously scrub your hair and body can lead to tired, achy muscles.

Fortunately, there’s a simple solution to this: baths. They eliminate many of the problems.

Then there’s styling your hair. Holding your arms up to brush, blow dry and flat iron is hard on the arms. For the heat sensitive, styling tools can make you feel like you’re in a microwave, especially after a hot shower.

Wearing Clothes

Waistbands. Bra straps. Elastic in socks. Rough fabrics. Tags. These are all things that can cause a lot of pain because of allodynia.

For those with both hot and cold sensitivity, deciding what to wear, and enduring the ramifications of the wrong choice, can be extremely unpleasant as you either freeze or overheat, or alternate between the two.

Talking on the Phone

We don’t normally think of a conversation as a strenuous mental activity, but when you have cognitive dysfunction (brain fog or fibro fog), it can become one.

All social interaction takes energy, and when you’re not face-to-face, it takes even more.

For most people, it’s not noticeable. For us, though, it definitely can be. Our foggy brains might not be up to the task at times.

Many of us have problems multi-tasking, so your brain may essentially block out what the other person is saying while your attention is on something else. Then you find yourself confused as to where the conversation has gone, which can be frustrating and embarrassing.

Many of us have problems with language, especially when it comes to finding the right word for things. Again, it’s frustrating and embarrassing, and if you know you’re having a bad day, communication-wise, it can be easy to stress over the problem and make it worse, or at the very least make the conversation unpleasant for you.

And then there’s the physical aspect. Holding a phone for very long can tire your arm, or your neck if you’re clenching it between your jaw and shoulder.

Driving

Brain fog can be a major problem when you’re behind the wheel. Some of us periodically forget where we’re going or how to get there. Even worse, we may become disoriented and not know where we are.

It’s scary when this happens and can lead to an anxiety attack, which makes the situation even worse.

Some of us also have trouble paying attention to the myriad things that we need to while driving. We may not be able to process all the necessary information to be safe on the road.

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27 thoughts on “Fibromyalgia – Day-to-Day Activities We Can Struggle With

  1. donnainthesouth

    but I was thinking you’d said you didn’t have a bath where you are now; do you think there’d be any way to remodel to be able to bring it down or anyway you could use the one upstairs; do you think you could get one of those stair chairs?

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    1. Tessa Post author

      I don’t have a bath up or downstairs. The downstairs tub was converted into a shower stall mainly since they cut out the side so my mom could step over it. I can’t even step over it, so my mom certainly couldn’t. Shower stall upstairs and I am not supposed to climb them since my last fall.

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    1. Tessa Post author

      Sure Kate it is very important to our way of living and what we have to deal with. I am working slowly on a series to go along with my mental health serious. I am advocating for all invisible illnesses that I am familiar with or have myself.

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  2. GiGiMandy

    Good description of some of the daily things we live with. I’m coming to you from your Tuesdays at Ten post. I noticed a this title so wanted to check it out. I have been writing fo Awareness fo about six weeks now. If you would like to guest write on living with fibromyalgia, I would love to have you. I’ve been trying to have a guest every Saturday. Check out my page Fibromyalgia is Real https://gigimandy.wordpress.com/1626-2/fibromyalgia-is-real/

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    1. Tessa Post author

      Thanks for your reply. I am dx since 2010. I would like to guest write. Do you have questions set up or just want me to write about life with Fibro and how I was finally dx?

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      1. GiGiMandy

        I was dx in 2012. R.A. in 2013. You may write what you like about living with fibro. Lately my posts are about how to live with it. I also try to write something to to care givers to encourage them. Thanks. Do you want to white directly to my blog or send me an e mail?

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  3. suesuzzz

    Hello!! and thank you for making this so clear…I will have my loved ones read it even tho they know..
    But this is just so true and nice to see others that have the same problem help each other…after all that is what it is about ; )
    again thank you….I have also flowed your blog ..very good information on here..
    Hugggs
    Suzette

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    1. Tessa Post author

      Thank you Suzette. I followed you back. I am filling my blog with useful information on the conditions I suffer with and maybe eventually I will expand it some more. Thank you for following me. Hugss back.

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      1. suesuzzz

        Thank you for the follow back as well : )
        I have some information on fibro and lupus but not near what I want and want to due to those post..But I look forward to reading more of your post since you have such great information.I think it is a great idea on what you are doing with your blog ..It is so helpful so I will be around more to read on your blog post..I can use all the information that I can get lol..We all can use information to help us get through tough times and what better way than to share our struggles and hardships..so I wish you the best and so look forward to reading more from you…
        Hugggggs and keep on doing what you are doing it is great..
        Suzette

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  4. DWPenner

    I wish more people could understand these invisible illnesses. I’ve seen how much they can steal from a person’s life. Sometimes the onset can be fairly slow and activities once loved fall by the wayside.

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  5. Carl D'Agostino

    Your knowledge and advice and personal experience plus your ability to write has is very important experience from which so many people can draw. Wishing you the best for your continued efforts to help people.

    Liked by 1 person

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