Category Archives: Chronic Illness

Stroke update! My pain update!


Dad is experiencing forward movement in some areas, but is going backwards in others. He is losing his memory slowly but surely. He no longer remembers how many children he has or the street he lives on. He knows me and my sister are his children or maybe I should say he remembers us but maybe he doesn’t make the connection that we are his children at times. There are 3 of us although my brother is in another part of the country and too far away to visit. Mys sister and I see to his needs.

We found a nice subacute rehab facility. It has large rooms, looks more like a bedroom than a hospital room. AND they do his laundry for free. Yea!

And that brings me to my problem. The parking lot is really far away from the entrance and then he is all the way down a long hall. They are built out on one floor rather than up. That walk is making the pains in my own body much worse and I can’t go every day, not that my sister or he want me to anyway. They both told me to not be so intense and to take care of myself. They only have one handicapped spot and it is taken usually.

My spine pain is much worse and I can feel it move. The pain dr wants a new MRI to see what is going on in there. My last one was in last September. This puts surgery back on the table as a possibility. She has increased my pain meds from 1 to 2 meaning every 3 hours I am taking either a Percocet or a Tramadol. I have to write down when I take them to keep it straight. 4 of each every day to help alleviate some of the pain since Percocets alone are no longer working.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work), new work is on this blog http://www.tessacandoit.com

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Opiates for Fibromyalgia and Chronic Fatigue Syndrome What You Need to Know About Narcotics


Opiates for Fibromyalgia and Chronic Fatigue Syndrome

What You Need to Know About Narcotics

I take Percocets. I still suffer pain, but without it, things are much worse. I do my best to keep my doses on time. I keep a list with the times I should take them and when I actually do so no taking too early.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.wordpress.com (this blog contains my old work), new work is on this blog http://www.tessacandoit.com

 

Still no apartment, epidural and bankruptcy


From a supposed move in time of March 1, no communication at all. Very frustrating. I know it doesn’t matter to them and we are just needy nobodies to them. Do they think I would put myself in this position if I didn’t have to. Very humiliating the treatment can be. I am afraid when they finally call to view the apartments I will be otherwise engaged in something I can’t change.

Still waiting for my court date for the bankruptcy. I did get the court number for my case, but still no date set.

I just had my 3rd lumbar epidural. I actually feel less pain this time. Maybe it will work this time and we can start on the neck. This time I did it with iv sedation and not a local. I never felt or knew it happened until they were waking me up. Costs more, but the way to go.

The office changed their name to Corda Pain Institute. Sounds more professional, but they are completely out of control and over booking and can’t handle parking, seating and the wait times are ridiculous as they also brought more doctors on. Every time I go which is usually 2-3 weeks apart, they have changed their procedures. And the left hand doesn’t know what the right hand is doing. They are driving me crazy.

SoI have started packing and donating to the thrift shop as well as trashing a lot. Most of it needed doing anyhow. Less to take with me. Took a car load to thrift store today. And both my dad and son are getting rid of things they don’t want either. Had trouble getting rid of things so far, but really they have no value to me or they wouldn’t have sat in boxes for over 14 years, some long.

So tired of going nowhere.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.wordpress.com (this blog contains my old work), new work is on this blog http://www.tessacandoit.com

 

The 9 Most Frustrating Parts of Being Chronically Ill


The 9 Most Frustrating Parts of Being Chronically Ill

I can feel her frustration. I have been chronically ill almost my entire life in some form or another.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.wordpress.com (this blog contains my old work), new work is on this blog http://www.tessacandoit.com