Category Archives: Chronic Illness

Fibromyalgia, Pain and Dementia


I am set to have my hip injected on Tuesday which means no NSAIDS for 5 days before. So since arthritis is pretty much throughout my body it is throbbing from that.

The stress of having that injection (no sedation but a local) has my Fibromyalgia also throbbing. All the pain points hurt and heaven forbid I want to scream each time they touch each other or some other object.

Then to add to that is my dad and his condition especially his dementia. My sister called me yesterday morning to warn me not to visit. She walked in there and he screamed at her to get out and go home. The place is dangerous and he didn’t want her there and a lot more. If he had done that to me I would have burst into tears and been frozen in my spot. My sister said she tried to talk him out of it, but he was simply lost in his dementia and like my mom was full of conspiracy theories. My mom thought my dad was trying to kill her and I was the only one she trusted and I would sit with her during these episodes so she felt safe, but my dad is sure the aliens he was studying about prior to his dementia are out for him and that my sister and I are not safe visiting him. She said that was the worst episode she has witnessed so far. I don’t go that often anyhow due to the long walk from the parking lot to the door, down a long hallway and then down another very long hallway. I can’t walk that far without numerous breaks. He doesn’t like visitors anyway and has no sense of time so he doesn’t protest and in fact he is happier we don’t come because he is so sure that we are being brought in for the kill. It upsets him more than makes him feel better.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Question: Can I Keep Working with Fibromyalgia or Chronic Fatigue Syndrome?


Question: Can I Keep Working with Fibromyalgia or Chronic Fatigue Syndrome?

For me, the answer to this was a resounding no. My job, was not physical, but it was mental and the “Fibro Fog” inhibited my ability to think, multitask and learn new things easily. I also had other physical conditions and it was necessary for me to go out on disability. It has been 8 and a half years ago now.

Anyone who has tried to live on government disability knows it is not easy. My pain and mental problems are difficult to deal with, but there is no choice as it is not curable and in my case none of the treatments tried have worked.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Changing pain meds – JusJoJan #31


January 31, 2019 #JusJoJan Wrapup

I have been on Percocets, high dose and not much relief.

After talking to my pain management doctor we have decided to try Morphine which is supposed to be stronger. I haven’t started yet so I don’t know for sure, but hope to start tomorrow. There was an issue with the dose (smallest) not being available. After much debate from the doctor and asking me if I would be willing to cut the next dose up in half we are going to hopefully have it for tomorrow.

This is also an experiment as supposedly I was allergic to Morphine according to the ER. I told the dr and she said the IV brands are much stronger and they probably overdosed me to begin with which she did as she was going to help me for the pain in the next few hours. I hope this works as I didn’t like being allergic to the Morphine. Ambulances can only use Morphine around here and if I were to be unconscious Morphine is the pain reliever they use. Granted I wouldn’t feel it most likely if I were unconscious.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Chronic Pain – So tired of it!


It has been 2 months since they deadened the nerves in my back. It was supposed to take only 6, maybe 8 months til it worked. It hasn’t although it does occasionally give me a small period maybe even a day without major pain. Nothing they do seems to help me. I am so tired of this chronic pain. It doesn’t give me much of a life, but what can I do but live with it.

I am trying to do things to take my mind off of it. I joined a book club, joined overeaters anonymous and go to bingo once a week. I am also reading more besides the book I have to read for the book club.

I haven’t felt much like writing though and my blogs are just sitting here.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Dementia Is Horrible


Dementia increasing. Never know what he is going to say or do. We are having a family Christmas party tomorrow. Hope he is in a receptive mood.

I am finally getting some relief in my spinal area that has been so horribly painful. Finally having some times without pain, thank God!

Merry Christmas from my son and I!

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Stroke update! My pain update!


Dad is experiencing forward movement in some areas, but is going backwards in others. He is losing his memory slowly but surely. He no longer remembers how many children he has or the street he lives on. He knows me and my sister are his children or maybe I should say he remembers us but maybe he doesn’t make the connection that we are his children at times. There are 3 of us although my brother is in another part of the country and too far away to visit. Mys sister and I see to his needs.

We found a nice subacute rehab facility. It has large rooms, looks more like a bedroom than a hospital room. AND they do his laundry for free. Yea!

And that brings me to my problem. The parking lot is really far away from the entrance and then he is all the way down a long hall. They are built out on one floor rather than up. That walk is making the pains in my own body much worse and I can’t go every day, not that my sister or he want me to anyway. They both told me to not be so intense and to take care of myself. They only have one handicapped spot and it is taken usually.

My spine pain is much worse and I can feel it move. The pain dr wants a new MRI to see what is going on in there. My last one was in last September. This puts surgery back on the table as a possibility. She has increased my pain meds from 1 to 2 meaning every 3 hours I am taking either a Percocet or a Tramadol. I have to write down when I take them to keep it straight. 4 of each every day to help alleviate some of the pain since Percocets alone are no longer working.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work), new work is on this blog http://www.tessacandoit.com

Opiates for Fibromyalgia and Chronic Fatigue Syndrome What You Need to Know About Narcotics


Opiates for Fibromyalgia and Chronic Fatigue Syndrome

What You Need to Know About Narcotics

I take Percocets. I still suffer pain, but without it, things are much worse. I do my best to keep my doses on time. I keep a list with the times I should take them and when I actually do so no taking too early.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.wordpress.com (this blog contains my old work), new work is on this blog http://www.tessacandoit.com