Category Archives: Chronic Illness

Exercise for Fibromyalgia and Chronic Fatigue Syndrome


Exercise for Fibromyalgia and Chronic Fatigue Syndrome

I am going through this right now as I am doing physical therapy per my pain management doctor’s orders. In the first three weeks I thought I was going to die. It took two days to get over the intense pain and fatigue. I was only doing 2 days a week and for less than 30 minutes. Now I can do the original program and they added a few more exercises in.

Thursday, July 9th, I am getting my second injection on the other side of my spine.

I also have a back brace that doesn’t fit me right as I am short-waisted. The woman who ordered it, insists I am doing it wrong. I doubt it, but someone is supposed to show me on Thursday so we will see.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Trying to get back into the swing of things.


I am having trouble getting back to regular blogging. The pain has become a major issue and I can barely stand it. Days of crying, don’t help, but what am I to do.

I just got a new pain management doctor since I changed to Medicare and have Medicaid. Dual coverage they call it and so most things should be covered. No more monthly premiums and all those copays.

My Medicaid also provides a home health aide to help with showering and dressing and the housework, shopping, and laundry. I also now have dental including dentures if/when I need them, hearing including hearing aids, and I am already certified by my last doctor as needing them 10 years ago, and eye checkups with glasses. I think it is one pair per year for diabetics.

They pay for my medical alert button and provide 1 meal a day.

There are a lot of other things, but I am not sure of everything that is part of the program. They do pay the 20% of what Medicare doesn’t cover. And due to my low income I am eligible with a lot of state help and/or medicare help for my prescriptions thank God. I couldn’t afford any on my little government disability check and the government is trying to get out of paying us as it is. Don’t know what will happen if they succeed. I can’t work.

My mental health is not quite as stable as it was. My anxiety is out of control during this pandemic and the uncertainty with the Medicaid.

Plus I spent April writing my book for NANOWRIMO and still working on other writing this month and when you get out of the habit it is hard to get back into it.

My dad’s nursing home (Long Term Care) has tested everyone for the virus and he doesn’t have it. However, their numbers are now, at last check, over 74 positive residents (all asymptomatic) and 9 positive employees with the first 3 employees now returning to work after recovering. And sadly 2 of the residents have died from the virus. We held for so long and it turned out they didn’t know they had sick residents since they weren’t showing any symptoms. They had decided to test all the residents and then the governor made it mandatory to test all nursing home residents. Half our numbers for the state are nursing home residents and assisted living residents. They don’t go out so they got it from the sick employees. However it seems that a lot of people are asymptomatic and not showing any signs of being sick, but they can pass it to someone else. This is a nasty virus and no wonder it is spreading so rapidly.

Our state is one of the worse and they are slowly starting to open things up a little bit. From what I have heard on the news there have been increases in the states that opened up earlier. That is what I expected would happen. We aren’t out of danger yet. Despite social distancing and wearing masks the numbers are still rising rapidly. I haven’t heard the last numbers we had. We have a lot of people still who insist that we don’t need masks or need to stay away from each other. I heard they had a party here last night and I think the largest number of people in groups is 10. I didn’t go, so I don’t know what happened. I am a huge risk factor so I am trying to protect myself.

I got notification from the pharmacy that I had a prescription for Narcan (to help prevent overdosing). I thought it was a mistake and contacted my prescriber which was my psychiatric nurse who writes my anxiety and psych meds. She told me that the governor has declared that anyone taking pain meds and anxiety meds must have Narcan available. Now I have to contact my pain management and report a new medication since that is the rule there, but as my psych nurse says he will have to write those same medications so I might get another one sent in from their office. She doesn’t prescribe me pain meds but knows I take them so she sent it in for me. I think that should have been done by pain management. I don’t have it yet as I am not making a separate trip when I know that I have other medications coming up for renewal.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Problems Showering With Fibromyalgia and ME/CFS


Problems Showering With Fibromyalgia and ME/CFS

I can’t shower by myself due to the chance of falling. I am applying for Medicaid which would provide a home health aide to help me shower and dress among other things. My pain makes it hard to clean the back side of my body as well.

My pain doctor is not seeing patients due to the coronavirus. The most I can do is get a refill as long as I am not sick and they are putting off as many people as possible. I don’t know if I would run out so I have to go tomorrow and I am not sick. The problem is I wanted to talk to the doctor about a different pain medicine, but all I can do is get a refill of what I am taking. Which is better than nothing.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Must use walker at all times


Doctor says I am a fall risk, duh! I was told to use the walker at all times and that included inside my apartment where I usually hobbled about. Finally getting used to it. I was leaving it all over the place LOL! Most of my falls, although not all of them have been in my apartment.

Started the application process for state aid (medicaid) and what a pain it is. Tons of paperwork. Designed to get you to quit most likely.

Pain management doctor took my Percocets away which I figured would happen. I was thinking of not mentioning what happened, but my daughters told me to tell her. What happened was serious. So she told me to cut them in half and she was going to prescribe Nucynta. Problem is the insurance company is fighting it. So I am in more pain because of the half of pill and if she doesn’t get it approved soon I am going to run out of them and I don’t know if the smaller dose would cause withdrawal or not. Of course, the doctor is not returning my phone calls. Even if I get the Nucynta I have to start out on a very small dose so don’t know how much pain relief  I might have anyhow. Chronic pain sucks.

My children have decided that it is too dangerous for me to live alone. Doesn’t leave a lot of options. None of them have room for me and that leaves long term care in a nursing home or assisted living, but that would be expensive since medicaid will cover the medical part, but not a living facility. And the nurse from medicaid that did my assessment agrees with my kids on the living alone part. I have lived alone exactly 3 years in my life total. The nurse is putting me down as needing help in many areas. Now just have to get through the medicaid part which can take months and constant requests for this or that paper. My sister just did it for my dad who is in a long term care facility for his stroke and dementia. This is a different program though.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I know what you are thinking – where the hell has she been?


My life was turned upside down and still isn’t completely righted yet.

Not sure what I did write so some of this may be repeated.

Around January 12, I was treated for a urinary tract infection and yeast infection. The start of my antibiotic roll.

On January 20 I woke up and felt really funny. I struggled to the bathroom and was standing by my emergency call bell, but my mind was on the fact that the bed seemed a hundred miles away and still moving. I couldn’t catch it. I looked at the phone, but my mind couldn’t comprehend what the phone would/could do and who should I call in the middle of the night and why. Still forgetting the call button at my side I started that long trek to my bed and reached out to pull the emergency button by my bed and passed out.

Luckily the guard was still on duty. I was non-responsive. He called the ambulance. They struggled to get me to wake up enough to walk to the stretcher since I was in a strange position on the bed and the couldn’t get the stretcher beside me. I remember very little of this day. I was rushed to the hospital. It was freezing out and I had on a T-shirt and shorts and bare feet.

Next, I recall my clothes being pulled off and a burning sensation that I later learned was a drug test. Unbeknownst to me, I was exhibiting drug overdose symptoms and sure enough, they found narcotics in me since I take 4 a day for pain. They started the drug overdose protocol and the Narcan being administered was horrendous. My daughter was watching this and crying. Each dose shocked me briefly into consciousness and then back out I would go. After a couple of doses I was awake long enough to understand that the next dose might very well throw me into withdrawal. However, since my kidneys were shutting down and my blood pressure was under 50 which is very low and dangerous they were more focused on that and they just told me to prepare myself because if I go into withdrawal I am going to be in terrible pain. They were pumping me full of liquids trying to force my kidneys to function but they weren’t cooperating and I didn’t even feel an urge to go. The next dose I got I shot out of the bed screaming in pain and crying about the pain in my chest. They did an EKG to make sure it wasn’t my heart and then went about trying to get me to wake up fully and get my kidneys to function and my blood pressure back to normal or at least higher than it was. Finally, my kidneys started to function and all that liquid was released and pushing through my kidneys. Blood pressure rose some and they decided I didn’t need to go to the ICU. I was put in a regular room with the ICU on standby.

I didn’t overdose on purpose. Due to kidney failure my narcotics were not flushing out so as I continued to take my normal dose they built up and thank God I woke up for whatever reason and realized something wasn’t right and pulled the emergency button before I passed out.

At one point in my life, I tried to overdose and didn’t take enough so that was my wake up call. I sure as hell do not want to do that again. They sent me home the next day with antibiotics for the bronchitis I had. Unfortunately it was very serious and my asthma complicated it and I was back in the hospital for a total of 10 days with antibiotics in my IV and orally. Pumped full of Prednisone which since it was a steroid it sent my blood sugars soaring. Came home on that. Plus all the breathing treatments and a new one and found out they contain steroids, some of them anyhow and my sugars all this time later are still out of whack.

Because of this I have home health care which is helping me apply for medicaid which is help I can really use. Dressing myself and bathing is downright difficult and since I have a bath tub and not a walk in shower I need help. Embarrassing, but I got over it. It is nice having help. Hopefully I will be approved for this long-term with a ton of paperwork to fill out.

So anyway I haven’t been around or up to writing. I am still recuperating.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Detrimental Habits With Fibromyalgia and ME/CFS



Detrimental Habits With Fibromyalgia and ME/CFS

I find myself doing these all the time.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Detrimental Habits With Fibromyalgia and ME/CFS By Adrienne Dellwo


Detrimental Habits With Fibromyalgia and ME/CFS By Adrienne Dellwo

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Gardening With Fibromyalgia and Chronic Fatigue Syndrome – Can You Still Do Yard Work?


Gardening With Fibromyalgia and Chronic Fatigue Syndrome

Can You Still Do Yard Work?

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Now I am not a gardener and I hate the outdoors and if you read this article and suffer from Fibromyalgia and have Chronic Fatigue Syndrome as well you might see the partial reason.  Well the main reasoning about gardening is that I am not interested in gardening, but I can’t be outside in the heat and sun either. It makes my skin “burn” even if in the shade. It’s not a pleasant feeling.

The humidity hampers my breathing as I have Asthma. I am currently taking my breathing medications through a nebulizer rather than an inhaler although I do have an inhaler for emergencies that I carry in my purse.

Now I wish I could convince my family that I am not just lazy but have legitimate reasons for my problems.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

 

Coping When You Have Fibromyalgia and You’re Told Nothing’s Wrong …When You KNOW Something’s Wrong!


Coping When You Have Fibromyalgia and You’re Told Nothing’s Wrong

…When You KNOW Something’s Wrong!

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It is very upsetting when your very own family doesn’t understand your condition. You can tell them over and over and it just doesn’t mean anything to some people. There are times I wish I can tell them to just spend a few days in my shoes and see how you feel. Some days I might not feel as bad and do something and then from that day forward, it is “why can’t you do ***** today when we saw you do it on such day?

I am going through an extremely bad period right now and have been for at least 2 to 3 months. I am having a major flare of both Fibromyalgia and Chronic Fatigue Syndrome. I am trying the very last medication available for these 2 syndromes. Nothing has worked and not sure whether this one will or not, but I am on the lowest dose so maybe a stronger dose might help. So far I am not having any bad side effects. That is amazing on its own. Most medications cause some reactions, but I am not noticing anything different so far, but it isn’t working yet either. I am still in a major flare-up of both.

Now the last 2 mornings I have gotten up in the morning around 7 to 8 AM which for the last 2 months or so I have been in bed non-stop and barely able to get up for more than an hour or more during the day. So maybe this is starting to work a little bit on the Chronic Fatigue at least.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Chronic Fatigue Syndrome & Dizziness Problems With Balance and Fainting


Chronic Fatigue Syndrome & Dizziness

Problems With Balance and Fainting

This is a problem for me and has worsened lately. I try to stand up and besides the pain, I am off balance and wobble and am afraid I will fall at first until I balance myself. This could also explain the extra falling and the feeling that I had fainted. I have been hospitalized several times with the syncope (fainting). They can find nothing to explain it. The Chronic Fatigue is not mentioned as a reason.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com