Category Archives: Fibromyalgia

Exercise for Fibromyalgia and Chronic Fatigue Syndrome


Exercise for Fibromyalgia and Chronic Fatigue Syndrome

I am going through this right now as I am doing physical therapy per my pain management doctor’s orders. In the first three weeks I thought I was going to die. It took two days to get over the intense pain and fatigue. I was only doing 2 days a week and for less than 30 minutes. Now I can do the original program and they added a few more exercises in.

Thursday, July 9th, I am getting my second injection on the other side of my spine.

I also have a back brace that doesn’t fit me right as I am short-waisted. The woman who ordered it, insists I am doing it wrong. I doubt it, but someone is supposed to show me on Thursday so we will see.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Multiple Chemical Sensitivity in Fibromyalgia and ME/CFS


Multiple Chemical Sensitivity in Fibromyalgia and ME/CFS

I have a major problem with perfumes, heavily scented soaps, and strong candles (like Yankee Candles). The smell of gas doesn’t bother me, although it can be unpleasant to smell. These issues started after I worked for 8 years in a factory that exposed us to high levels of chemical smells from melting plastic.

I don’t use many cleaning products so not sure if they are an issue or not. The ones I use don’t bother me much.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Chronic Fatigue Syndrome & Dizziness


Chronic Fatigue Syndrome & Dizziness

This is a big issue for me. I have terrible balance problems and Dizziness (also Vertigo) and I have been told that I must use a walker at all times. I have also passed out and woken up to find myself on the floor, on top of a side table that broke under me and hurt like hell and in other crazy situations. They can’t find a medical cause for this. However, this study seems to fit my condition. I have both Fibromyalgia and Chronic Fatigue Syndrome. I will fall asleep just sitting here on the computer. I used to fall asleep at work on my computer as well. When it gives me a warning I lie down so I don’t fall.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Language Impairment in Fibromyalgia and CFS


Language Impairment in Fibromyalgia and CFS

This particular part of Fibromyalgia and Chronic Fatigue Syndrome is often quite embarrassing. I worked in a call center and I would suddenly stop as my mind went blank and the simplest words would not come. Now I am making youtube videos and I run into the same problem. I either leave it there if it is a simple and quick fix or I just have to start recording all over again.

The words I forget can be as simple as the word cat. They are not usually long words which you might expect to be a problem. No something as simple as cat can trip me up.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Trying to get back into the swing of things.


I am having trouble getting back to regular blogging. The pain has become a major issue and I can barely stand it. Days of crying, don’t help, but what am I to do.

I just got a new pain management doctor since I changed to Medicare and have Medicaid. Dual coverage they call it and so most things should be covered. No more monthly premiums and all those copays.

My Medicaid also provides a home health aide to help with showering and dressing and the housework, shopping, and laundry. I also now have dental including dentures if/when I need them, hearing including hearing aids, and I am already certified by my last doctor as needing them 10 years ago, and eye checkups with glasses. I think it is one pair per year for diabetics.

They pay for my medical alert button and provide 1 meal a day.

There are a lot of other things, but I am not sure of everything that is part of the program. They do pay the 20% of what Medicare doesn’t cover. And due to my low income I am eligible with a lot of state help and/or medicare help for my prescriptions thank God. I couldn’t afford any on my little government disability check and the government is trying to get out of paying us as it is. Don’t know what will happen if they succeed. I can’t work.

My mental health is not quite as stable as it was. My anxiety is out of control during this pandemic and the uncertainty with the Medicaid.

Plus I spent April writing my book for NANOWRIMO and still working on other writing this month and when you get out of the habit it is hard to get back into it.

My dad’s nursing home (Long Term Care) has tested everyone for the virus and he doesn’t have it. However, their numbers are now, at last check, over 74 positive residents (all asymptomatic) and 9 positive employees with the first 3 employees now returning to work after recovering. And sadly 2 of the residents have died from the virus. We held for so long and it turned out they didn’t know they had sick residents since they weren’t showing any symptoms. They had decided to test all the residents and then the governor made it mandatory to test all nursing home residents. Half our numbers for the state are nursing home residents and assisted living residents. They don’t go out so they got it from the sick employees. However it seems that a lot of people are asymptomatic and not showing any signs of being sick, but they can pass it to someone else. This is a nasty virus and no wonder it is spreading so rapidly.

Our state is one of the worse and they are slowly starting to open things up a little bit. From what I have heard on the news there have been increases in the states that opened up earlier. That is what I expected would happen. We aren’t out of danger yet. Despite social distancing and wearing masks the numbers are still rising rapidly. I haven’t heard the last numbers we had. We have a lot of people still who insist that we don’t need masks or need to stay away from each other. I heard they had a party here last night and I think the largest number of people in groups is 10. I didn’t go, so I don’t know what happened. I am a huge risk factor so I am trying to protect myself.

I got notification from the pharmacy that I had a prescription for Narcan (to help prevent overdosing). I thought it was a mistake and contacted my prescriber which was my psychiatric nurse who writes my anxiety and psych meds. She told me that the governor has declared that anyone taking pain meds and anxiety meds must have Narcan available. Now I have to contact my pain management and report a new medication since that is the rule there, but as my psych nurse says he will have to write those same medications so I might get another one sent in from their office. She doesn’t prescribe me pain meds but knows I take them so she sent it in for me. I think that should have been done by pain management. I don’t have it yet as I am not making a separate trip when I know that I have other medications coming up for renewal.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Treating GABA/Glutamate Dysregulation in Fibromyalgia and ME/CFS


Treating GABA/Glutamate Dysregulation in Fibromyalgia and ME/CFS

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Allodynia: A Rare, Distinct Type of Pain in Fibromyalgia and ME/CFS


Allodynia: A Rare, Distinct Type of Pain in Fibromyalgia and

ME/CFS

This particular sympton of Fibromyaliga and Chronic Fatigue Syndrome is really painful. Imagine pain just from a light touch, whether a finger lightly drawn across the skin to the touch of a shirt or other clothing on your body. You find you can’t tolerate hugs from people. The blankets or sheets on your bed may be too much and just a simple breeze of a fan blowing over you could bring on this pain.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

5 Don’ts for a Better Relationship With a Fibromyalgia or CFS Doctor


5 Don’ts for a Better Relationship With a Fibromyalgia or CFS Doctor

My family doctor who Is about to become my main doctor, since I finally qualified for Medicaid, doesn’t believe in Fibromyalgia or Chronic Fatigue Syndrome. He tolerates my complaints but doesn’t do anything about them. I have stopped talking to him about it.  I was talking about my condition with my rheumatologist, but all of my doctors are about to change since I am going to have to find Medicaid doctors instead. It won’t be easy starting over with all new doctors, but I will be saving money and that is the important thing right now. I have to survive on a small Social Security Disability Check.

 

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Language Impairment in Fibromyalgia and CFS


Language Impairment in Fibromyalgia and CFS

https://www.verywellhealth.com/language-impairment-in-fibromyalgia-cfs-716024?utm_campaign=list_chronicfatigue&utm_medium=email&utm_source=cn_nl&utm_content=19764760&utm_term=

I hate when this happens as it is so embarrassing. My last job before I went on disability was in a call center. I would suddenly stop while talking to the customer and stumble over words trying to tell them what I meant.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Fibromyalgia Pain From Clothing and the Coronavirus


Fibromyalgia Pain From Clothing

https://www.verywellhealth.com/fibromyalgia-clothing-pain-715962?utm_campaign=list_chronicfatigue&utm_medium=email&utm_source=cn_nl&utm_content=19659601&utm_term=

I quit wearing a bra and I am large chested, but it is just too uncomfortable and I rarely go out in public and if I do, tough bananas!

I only dress for the outside on the few occasions I leave my house and that is even less now that the coronavirus is all around me. People in my building are sick. We’re only allowed in the lobby if we are leaving, getting our mail or going to the laundry room. They closed our community room and stopped all our activities. No standing or stopping in the community areas. I am surprised they still let us get on the elevators together. Someone in management was overheard saying that will all that is going on here that they should shut the building down. Well, the law says you aren’t allowed to evict anyone from their living spaces in the time of this virus. At least around here. They can’t cut off your utilities either for non-payment and so many people are out of work right now. We have an 8 PM curfew. If you are on the roads after that you had better have a really good reason. The number of cases in my state is rising rapidly. I don’t know for sure how many people in my building are sick, but I am aware of 2. It is like a ghost town around here. Supplies are hard to get. I managed to stock up on food and water at least. As long as they don’t shut down the electric. They can’t cut us off for non-payment but if the grid goes down there’s nothing we can do and then I have a problem. I do have a good bit of water though.

Oh, and the doctors offices are either shutting down, using the phone and video chats, making you call inside to be told when you can enter the building so you are waiting in your car not the waiting room and in one I had my temperature taken before I was allowed to enter and all non-essential appointments are canceled.  There is no furniture in the waiting room so they don’t have to keep wiping it down. Weird experiences for sure.

My pain doctor is giving me less and less pain medication and I can barely stand it. And she isn’t seeing patients so I couldn’t even plead my case. I am furious with her.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.