Category Archives: Fibromyalgia

Fibromyalgia, Pain and Dementia


I am set to have my hip injected on Tuesday which means no NSAIDS for 5 days before. So since arthritis is pretty much throughout my body it is throbbing from that.

The stress of having that injection (no sedation but a local) has my Fibromyalgia also throbbing. All the pain points hurt and heaven forbid I want to scream each time they touch each other or some other object.

Then to add to that is my dad and his condition especially his dementia. My sister called me yesterday morning to warn me not to visit. She walked in there and he screamed at her to get out and go home. The place is dangerous and he didn’t want her there and a lot more. If he had done that to me I would have burst into tears and been frozen in my spot. My sister said she tried to talk him out of it, but he was simply lost in his dementia and like my mom was full of conspiracy theories. My mom thought my dad was trying to kill her and I was the only one she trusted and I would sit with her during these episodes so she felt safe, but my dad is sure the aliens he was studying about prior to his dementia are out for him and that my sister and I are not safe visiting him. She said that was the worst episode she has witnessed so far. I don’t go that often anyhow due to the long walk from the parking lot to the door, down a long hallway and then down another very long hallway. I can’t walk that far without numerous breaks. He doesn’t like visitors anyway and has no sense of time so he doesn’t protest and in fact he is happier we don’t come because he is so sure that we are being brought in for the kill. It upsets him more than makes him feel better.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Question: Can I Keep Working with Fibromyalgia or Chronic Fatigue Syndrome?


Question: Can I Keep Working with Fibromyalgia or Chronic Fatigue Syndrome?

For me, the answer to this was a resounding no. My job, was not physical, but it was mental and the “Fibro Fog” inhibited my ability to think, multitask and learn new things easily. I also had other physical conditions and it was necessary for me to go out on disability. It has been 8 and a half years ago now.

Anyone who has tried to live on government disability knows it is not easy. My pain and mental problems are difficult to deal with, but there is no choice as it is not curable and in my case none of the treatments tried have worked.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Cold Survival With Fibromyalgia & Chronic Fatigue Syndrome


Cold Survival With Fibromyalgia & Chronic Fatigue Syndrome

I do occasionally get cold nowadays since I have the Fibromyalgia. Some people are always freezing and bundled up with it. It affects everyone differently.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Chronic Pain – So tired of it!


It has been 2 months since they deadened the nerves in my back. It was supposed to take only 6, maybe 8 months til it worked. It hasn’t although it does occasionally give me a small period maybe even a day without major pain. Nothing they do seems to help me. I am so tired of this chronic pain. It doesn’t give me much of a life, but what can I do but live with it.

I am trying to do things to take my mind off of it. I joined a book club, joined overeaters anonymous and go to bingo once a week. I am also reading more besides the book I have to read for the book club.

I haven’t felt much like writing though and my blogs are just sitting here.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Stroke vs Dementia – not a winning combination


My dad is a gentle and kind man. The other day (he is now in long term care) he struck out at a woman who was touching him and he grabbed her arm and threatened to twist her neck if she didn’t stop touching his ears. They called my sister as this is not normal behavior for him, but it took her hours to talk to him and try to bring him back to reality. This is what we have to look forward to.

We have to get his house sold, car etc. as he is almost broke and we are still waiting on the government to come through with his Medicaid to pay for the Long Term Care. He is now cash pay or whatever term they use.

I am not much help as I am still in tremendous back pain. I had the nerves deadened 3 weeks ago, but not helping much yet if at all. I occasionally will get a break, but that is usually when I am laying down.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Depression in Fibromyalgia and Chronic Fatigue Syndrome


Depression in Fibromyalgia and Chronic Fatigue Syndrome

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

CBD for Fibromyalgia: Is it Effective, Safe, or Legal?


CBD for Fibromyalgia: Is it Effective, Safe, or Legal?

I tried the CBD oil, but didn’t find it helpful. Personally just another way to waste my money. But it might work for you. One never knows what will work for someone else without trying it.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com