Category Archives: Hospital

The Family Of Stroke Victims Seen From The Inside


My dad is literally disappearing before our eyes. They don’t tell us much and until today I refrained from looking up symptoms, info and support groups. I need them. I am constantly bothering my therapist who is willing to help me out, but I need to understand more about what is going to possibly happen and be prepared.

My sister is strong. She doesn’t let her emotions ride on her sleeve. Is she scared? Of course she is. She just holds it better. She makes all decisions only when the two of us have talked over what is best for dad and agree to it.

He is losing his memories as his brain continues to die. He doesn’t want to live anymore and wants to be with mom. I understand this and he is letting things go we think. We don’t blame him. He wants to go and as much as that hurts it is something he has a right to want. He has an advanced directive and it states what he wants or doesn’t want. Currently his heart is strong. Heart attack is not likely right now. He talks suicide, but that shouldn’t be easy for him to do. We figure the most he can do is to stop eating and drinking and he has a directive that says no feeding tube or fluids except pain medicine. He hasn’t given up yet, still eating and drinking so he isn’t seriously thinking suicide yet.

The poor man is proud and now he has to have help using the bathroom and is incontinent so wears diapers. He whispers how embarrassed he is. I don’t blame him and right now if I pass over I would rather go in my sleep. We saved him and he doesn’t remember life and how you do things or anything new. Long term memory is going slower. Short term faster.

I am off to look up strokes and find a support group.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

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Mad, Mad Day


As most of you know my world is crazy right now. My dad has been in 4 Facilities since his stroke. Today we got a call for the 5th and hopefully last one, but it was a matter of less than 2 hours to get him there. If we hesitated we would lose it. This is hopefully where he will finish his subacute rehab and then move into long term care. As much as we hate to do it he can’t go home without 24/7 care. That just isn’t an option.

Sometimes he is relieved he won’t be alone and then he wants to go home. We had to make the choice that is best for him.He seemed to like the place today.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Extra pain pills helping pain, but making me sleepy! Stroke and memory loss!


I kept dozing off while at the rehab center with my dad. We had a family care meeting to see where he stands.

Right now if he went home he would need a nurse 24/7 (not affordable).

Their current goal is to have him functioning with help in 4-5 weeks as they say he is making progress. Maybe physically he is, but what about the memory loss. He doesn’t know how many children he has. He doesn’t remember his address (I am fairly sure his driving days are over anyhow). He is slowly losing his birthdate, which is important in all things medical and I doubt he remembers his social security number. And now he is asking for my mom’s birthyear. So that is also disappearing. Who knows what else that hasn’t come to our attention yet.

He is in a diaper as he can’t get to the bathroom in time nor use a urinal though that doesn’t surprise me as he is in a diaper that he can’t get off anyhow. We have to hope they know what they are doing.

He feeds himself with his opposite hand due to his left side neglect. Trying to teach him to remember to turn his head with his food tray as he doesn’t know what is on his left as it doesn’t occur to him to look there without prompting. I have also been working with him to turn his plate as half of it is on the left side which he doesn’t see. I find it hard put to think he could do this again on his own. We don’t want him in long care rehab or a nursing home, but it looks like that will be happening. We do not mention it. We still talk as if he is going home.

I haven’t cried yet although a good cry would help clear the air some. He’s lost his dignity and just does what he is told.

This sucks!

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work), new work is on this blog http://www.tessacandoit.com

So 2 weeks living alone and I injure my knee worse than ever, can’t stand on it


I am such a clutz. My knees have been acting weird and then one decides to pop out of place. Can’t put weight on it, have to struggle dragging a foot with the help of a woman and get in my car. Can’t drive. So now calling the family isn’t just a few minutes They are 30 minutes away and my dad gets lost so thankfully my son came with him to drive my car and find me using GPS.

I was at the library getting a membership and books on budgeting. Not my thing. I need help with that. Have to learn if I am going to make it with my own apartment.

So using my walker and the rollator (has wheels) and 1 footed hopping I am getting around. The only good thing the hospital did was send a referral to a home health care place to see if I qualify for home physical therapy. I told the hospital I was allergic to morphine and how the hospital had to intervene because of my reaction. Ten minutes late that idiot was giving me morphine. I could feel the side-effects starting and finally she turned it off. I was so pissed. It is the worst allergy I have. I also came out with a tremendous cold or allergies or something and it is getting worse. Nothing I have here helps. This hospital has a terrible reputation Wonder why? Hah!

Slowly moving in, but need help. My one daughter is great. I need her to find things especially now since I can’t climb my step stool or get around or lift.

I finally found some of my clothes.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.wordpress.com (this blog contains my old work), new work is on this blog http://www.tessacandoit.com