Category Archives: Pain

Opiates for Fibromyalgia


Opiates for Fibromyalgia

I take opiates for the problems with my spine more-so than Fibromyalgia and so I don’t know if they are doing anything for the Fibro or not. Right now they aren’t helping my back and spine either. Since having the 6 facet joint injections in the spine the pain has been much worse. No  help at all for the most part. I have to see if they have a higher dose and if she will prescribe it. Since I take psyche and anxiety meds they don’t like to mix them as they are more dangerous in combination.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

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6 injections in the facet joints – more pain not less, next up a nerve block


I thought one injection was bad, but try 6 at one time and to make it worse, it is worse pain now than before. Now they are talking about deadening my nerves to stop the pain. If only that works. I am having trouble being positive during all this.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Strokes, Fibromyalgia, Spinal Degeneration and BusyBodies


Due to my physical and mental issues I have to cut my visiting the rehab center down to maybe once a week. At the blink of an eye I am crying. I am tired of people seeing me crying and having loss of my emotions so that I have to constantly contact my therapist to calm me down. My dad is fading away. He doesn’t want to live. He is done with this life and ready to go to heaven to be with his beloved wife. How do you have a conversation with someone who can’t remember his life or much of yours? My dad was a football (USA) freak and if his favorite team wasn’t playing he would watch another game with just as much enthusiasm. Now he refers to the Philadelphia Eagles as those green guys throwing a ball around and why were people clapping? His joy of football is gone. He was avid with politics and they were always on and he was up on everything, Now he isn’t even sure what country he is in and spends a lot of time in WW2 or his childhood.

Now we come to the busybodies. My sister and I are having to make emotional decisions as to our dad’s care. If you ever had to make those decisions for a loved one you know it is not easy and it hurts to have to decide where your loved one will live. Is he going to be safe? Well taken care of? And the ton of paperwork and the government comes in and in one fell swoop everything he worked for all his life is gone. We are not rich. He can’t afford home care for 24/7. So we must liquidate the man’s belongings and apply to the government (Medicaid in the USA) to pay for his upkeep and care. He kept my mom at home and was her sole caregiver. It was hard on him, but he didn’t complain, but we don’t have the same option now. She had Parkinson’s Disease and Dementia and by the time she needed full time care he had retired early and was there. He didn’t want our help, it was his wife and his responsibility according to his wedding vows. My sister did try to get them to go to assisted living where he could go with her, but they would take care of her. They refused. My mom wanted to go to a nursing home now called Long Term Care, but when we explained it she chose to stay home with dad. This is not the same situation. He can’t be left alone. He knows he is not supposed to get out of the chair or the bed, but tries often. He needs constant care which we can’t give him. We are doing the best that we can. When he’s lucid he understands and is fine with long term care and then he’ll flip the other way and it’s all about when he’s going home. Neither conversation is pleasant.

Those of you who have never been through something like this keep your comments to yourself. We feel guilty enough even though we are doing every thing we can for the man who raised us.

The pain and popping in my spine is getting worse. I can barely move and I have to wait until October 2 before I get the 6 facet joint injections in my spine and due to new laws my weight won’t allow me to have sedation. I had just one in my knee and screamed bloody murder so can only imagine 6 of them at once. All I can have is local anesthesia. It doesn’t do much. And the stress is allowing my Fibromyalgia to flare up as well and for 5 days before the injections I can’t have my NSAID arthritis medicine so don’t know how this is going to work. I am terrified of just going off my arthritis medicine. I can still take the percosets which help, but not much. I need the combination, but NSAIDS are blood thinners and not allowed 5 days before.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

MRI – severe changes in spine in one year


They were to do just the lumbar spine, but for some reason they did both lumbar (lower) and thoracic (mid spine) and the results showed really bad changes. No wonder I am in such terrible pain.

Good news, no surgery yet. Bad news I have to have a series of 6 injections in the facet joints in one section and then the 2nd section. If this doesn’t help then they use radio waves in the nerves.

The girl scheduled me for more than 4 weeks and I said she wanted 2 to 3. The doctor happened to be standing there and since it was her day to work in the procedure room she could add another patient if she wanted, so I am scheduled for October 2.

Wish me luck!

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Fibromyalgia Pain From Clothes


Fibromyalgia Pain From Clothes

This is a good article for those with pain from clothing. It has some suggestions that will work for almost everyone.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

A Day At Radiology


Most people go to radiology with just one test in mind. Maybe a mammogram or an MRI. I decided since I hated them both that I would just take one day and schedule them both.

It was time for my routine yearly mammogram. I hate to have them done as something always goes wrong. Whether it is how the technician does it (today she slammed my jaw and chin in the machine. I am yelling and she came running to see what happened. I couldn’t move the machine off of the area and it really hurt.

Mammo’s are painful for me because of the Fibromyalgia. I told her about it and asked that she only tighten the plates the minimum she needed to take the test. Some technicians simple squeeze as hard as possible. She listened and at least a few of the tests weren’t so bad. Now I have to wait and see what they see on the pictures. Every other year or so I am told that they see something and I have to redo the mammo and add an ultrasound and in some cases they want a biopsy which was one of the worst tests I have had done. The anesthesia did not work and I was screaming bloody murder while being scolded about it because after all they gave me anesthesia. Bull! It didn’t work. I went from screaming to tears running down my face and I closed my eyes and tried to ignore it, but every time they touched me I jumped and yelled. The person in charge finally realized that I wasn’t looking at them, but was reacting to each touch. She said to me, “You REALLY are feeling that?” I have a have pain threshold after 40 or more years of chronic pain so you know this was bad. I gave birth to 3 children naturally and didn’t have this much pain. She stopped everything and went through the anesthesia again. It helped a little, but I just finally beared it and got it over with. I don’t want to hear the word biopsy on my breast again. AND there was nothing wrong just to add insult to injury.

Now the MRI is hard as I am incredibly claustrophobic. I took my anxiety medicine before it and since it was my lumbar spine I could go in legs first. Not as scary, plus I had a long ride, but I made the trip since this location had the shortest and the widest bore so i could handle the claustrophobia.

I had a few uncomfortable hours, but it is done and over with and no longer have to look forward to either one of the tests.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Problems Showering With Fibromyalgia and Chronic Fatigue Syndrome


Problems Showering With Fibromyalgia and Chronic Fatigue

Syndrome

I find showers difficult and painful. Just the physical pain from climbing into the bathtub is too much. I have to hold onto both handles and sometimes I have to let go and literally lift my leg up and over the side of the tub. Everytime I shower I wish I had a shower stall. I can’t use the tub and take a bath because I can’t sit down in there and then get back up. I used to love to lie back and soak in a hot bath. I can’t do that anymore and haven’t been able to for at least 14 years.

Most of my washing up consists of baby wipes with a shower once or possibly twice a week depending on my pain or exhaustion.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com