Tag Archives: Chronic Pain

Fibromyalgia Pain From Clothing and the Coronavirus


Fibromyalgia Pain From Clothing

https://www.verywellhealth.com/fibromyalgia-clothing-pain-715962?utm_campaign=list_chronicfatigue&utm_medium=email&utm_source=cn_nl&utm_content=19659601&utm_term=

I quit wearing a bra and I am large chested, but it is just too uncomfortable and I rarely go out in public and if I do, tough bananas!

I only dress for the outside on the few occasions I leave my house and that is even less now that the coronavirus is all around me. People in my building are sick. We’re only allowed in the lobby if we are leaving, getting our mail or going to the laundry room. They closed our community room and stopped all our activities. No standing or stopping in the community areas. I am surprised they still let us get on the elevators together. Someone in management was overheard saying that will all that is going on here that they should shut the building down. Well, the law says you aren’t allowed to evict anyone from their living spaces in the time of this virus. At least around here. They can’t cut off your utilities either for non-payment and so many people are out of work right now. We have an 8 PM curfew. If you are on the roads after that you had better have a really good reason. The number of cases in my state is rising rapidly. I don’t know for sure how many people in my building are sick, but I am aware of 2. It is like a ghost town around here. Supplies are hard to get. I managed to stock up on food and water at least. As long as they don’t shut down the electric. They can’t cut us off for non-payment but if the grid goes down there’s nothing we can do and then I have a problem. I do have a good bit of water though.

Oh, and the doctors offices are either shutting down, using the phone and video chats, making you call inside to be told when you can enter the building so you are waiting in your car not the waiting room and in one I had my temperature taken before I was allowed to enter and all non-essential appointments are canceled.  There is no furniture in the waiting room so they don’t have to keep wiping it down. Weird experiences for sure.

My pain doctor is giving me less and less pain medication and I can barely stand it. And she isn’t seeing patients so I couldn’t even plead my case. I am furious with her.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

A couple of weeks until NANOWRIMO camp writing session.


I have been trying to remember my childhood as that is the portion of my memoir I plan on working on at this session.

I am not doing much right now as I am in serious pain and pain doctor will not give me the strong medicine I need due to my accidental almost overdose. It was a freak accident and nothing else is working so I don’t do much, but sit around or lie around or cry. Lots of crying going on here.

My life really sucks right now. I thought it was bad before, but this is the worst imaginable pain and nothing I can do about it. I can’t imagine living another 20 years or so with this pain and it is only going to get worse. Whoever heard of Degenerative Disk Disease that reverses and goes away. No one I know of. The arthritis won’t go away and neither will the Fibromyalgia and now because of a stupid freak accident, I can’t have pain medicine.

And now we have this coronavirus nonsense going on and they are shutting everything down where people can get together in groups more than 10. They shut our day room down so no more activities till something changes. The grocery stores have nothing in them. I can’t even get my medicines that have to be ordered at this point. I am in NJ (USA), not Italy or China so I can’t imagine what it is like there.

God Help Us All!!!!!!!!!!!!!

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Must use walker at all times


Doctor says I am a fall risk, duh! I was told to use the walker at all times and that included inside my apartment where I usually hobbled about. Finally getting used to it. I was leaving it all over the place LOL! Most of my falls, although not all of them have been in my apartment.

Started the application process for state aid (medicaid) and what a pain it is. Tons of paperwork. Designed to get you to quit most likely.

Pain management doctor took my Percocets away which I figured would happen. I was thinking of not mentioning what happened, but my daughters told me to tell her. What happened was serious. So she told me to cut them in half and she was going to prescribe Nucynta. Problem is the insurance company is fighting it. So I am in more pain because of the half of pill and if she doesn’t get it approved soon I am going to run out of them and I don’t know if the smaller dose would cause withdrawal or not. Of course, the doctor is not returning my phone calls. Even if I get the Nucynta I have to start out on a very small dose so don’t know how much pain relief  I might have anyhow. Chronic pain sucks.

My children have decided that it is too dangerous for me to live alone. Doesn’t leave a lot of options. None of them have room for me and that leaves long term care in a nursing home or assisted living, but that would be expensive since medicaid will cover the medical part, but not a living facility. And the nurse from medicaid that did my assessment agrees with my kids on the living alone part. I have lived alone exactly 3 years in my life total. The nurse is putting me down as needing help in many areas. Now just have to get through the medicaid part which can take months and constant requests for this or that paper. My sister just did it for my dad who is in a long term care facility for his stroke and dementia. This is a different program though.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I know what you are thinking – where the hell has she been?


My life was turned upside down and still isn’t completely righted yet.

Not sure what I did write so some of this may be repeated.

Around January 12, I was treated for a urinary tract infection and yeast infection. The start of my antibiotic roll.

On January 20 I woke up and felt really funny. I struggled to the bathroom and was standing by my emergency call bell, but my mind was on the fact that the bed seemed a hundred miles away and still moving. I couldn’t catch it. I looked at the phone, but my mind couldn’t comprehend what the phone would/could do and who should I call in the middle of the night and why. Still forgetting the call button at my side I started that long trek to my bed and reached out to pull the emergency button by my bed and passed out.

Luckily the guard was still on duty. I was non-responsive. He called the ambulance. They struggled to get me to wake up enough to walk to the stretcher since I was in a strange position on the bed and the couldn’t get the stretcher beside me. I remember very little of this day. I was rushed to the hospital. It was freezing out and I had on a T-shirt and shorts and bare feet.

Next, I recall my clothes being pulled off and a burning sensation that I later learned was a drug test. Unbeknownst to me, I was exhibiting drug overdose symptoms and sure enough, they found narcotics in me since I take 4 a day for pain. They started the drug overdose protocol and the Narcan being administered was horrendous. My daughter was watching this and crying. Each dose shocked me briefly into consciousness and then back out I would go. After a couple of doses I was awake long enough to understand that the next dose might very well throw me into withdrawal. However, since my kidneys were shutting down and my blood pressure was under 50 which is very low and dangerous they were more focused on that and they just told me to prepare myself because if I go into withdrawal I am going to be in terrible pain. They were pumping me full of liquids trying to force my kidneys to function but they weren’t cooperating and I didn’t even feel an urge to go. The next dose I got I shot out of the bed screaming in pain and crying about the pain in my chest. They did an EKG to make sure it wasn’t my heart and then went about trying to get me to wake up fully and get my kidneys to function and my blood pressure back to normal or at least higher than it was. Finally, my kidneys started to function and all that liquid was released and pushing through my kidneys. Blood pressure rose some and they decided I didn’t need to go to the ICU. I was put in a regular room with the ICU on standby.

I didn’t overdose on purpose. Due to kidney failure my narcotics were not flushing out so as I continued to take my normal dose they built up and thank God I woke up for whatever reason and realized something wasn’t right and pulled the emergency button before I passed out.

At one point in my life, I tried to overdose and didn’t take enough so that was my wake up call. I sure as hell do not want to do that again. They sent me home the next day with antibiotics for the bronchitis I had. Unfortunately it was very serious and my asthma complicated it and I was back in the hospital for a total of 10 days with antibiotics in my IV and orally. Pumped full of Prednisone which since it was a steroid it sent my blood sugars soaring. Came home on that. Plus all the breathing treatments and a new one and found out they contain steroids, some of them anyhow and my sugars all this time later are still out of whack.

Because of this I have home health care which is helping me apply for medicaid which is help I can really use. Dressing myself and bathing is downright difficult and since I have a bath tub and not a walk in shower I need help. Embarrassing, but I got over it. It is nice having help. Hopefully I will be approved for this long-term with a ton of paperwork to fill out.

So anyway I haven’t been around or up to writing. I am still recuperating.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Multiple Chemical Sensitivity in Fibromyalgia and ME/CFS


Multiple Chemical Sensitivity in Fibromyalgia and ME/CFS

I am very sensitive to different chemicals up to and including candles and perfumes. You know how some people douse themselves in perfume. It just about kills me trying to breathe through that. I have to avoid the candle stores and perfume sections of stores. I can’t tolerate the scents.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Post-Exertional Malaise Overview


Post-Exertional Malaise Overview

This is so very real and right now worse than ever. Change my bed and it will take a few days to get over it. Go for groceries and between the worsened pain and the malaise I am out again for days. I can’t clean my apartment. It just sucks the life out of you.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Detrimental Habits With Fibromyalgia and ME/CFS



Detrimental Habits With Fibromyalgia and ME/CFS

I find myself doing these all the time.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.