Tag Archives: Chronic Pain

Fatigue Syndrome – Dealing with overload & anxiety


Fatigue Syndrome

Dealing with overload & anxiety

Excerpt:

“Sensory overload may be linked to hypersensitivity, which is believed to be a core mechanism of FMS and ME/CFS. It means that our bodies react strongly to all kinds of input–noise, bright or flashing lights, crowds of people, strong smells, a chaotic environment, or multiple things competing for your attention.”

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Gardening With Fibromyalgia and Chronic Fatigue Syndrome – Can You Still Do Yard Work?


Gardening With Fibromyalgia and Chronic Fatigue Syndrome

Can You Still Do Yard Work?

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Now I am not a gardener and I hate the outdoors and if you read this article and suffer from Fibromyalgia and have Chronic Fatigue Syndrome as well you might see the partial reason.  Well the main reasoning about gardening is that I am not interested in gardening, but I can’t be outside in the heat and sun either. It makes my skin “burn” even if in the shade. It’s not a pleasant feeling.

The humidity hampers my breathing as I have Asthma. I am currently taking my breathing medications through a nebulizer rather than an inhaler although I do have an inhaler for emergencies that I carry in my purse.

Now I wish I could convince my family that I am not just lazy but have legitimate reasons for my problems.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

 

Coping When You Have Fibromyalgia and You’re Told Nothing’s Wrong …When You KNOW Something’s Wrong!


Coping When You Have Fibromyalgia and You’re Told Nothing’s Wrong

…When You KNOW Something’s Wrong!

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It is very upsetting when your very own family doesn’t understand your condition. You can tell them over and over and it just doesn’t mean anything to some people. There are times I wish I can tell them to just spend a few days in my shoes and see how you feel. Some days I might not feel as bad and do something and then from that day forward, it is “why can’t you do ***** today when we saw you do it on such day?

I am going through an extremely bad period right now and have been for at least 2 to 3 months. I am having a major flare of both Fibromyalgia and Chronic Fatigue Syndrome. I am trying the very last medication available for these 2 syndromes. Nothing has worked and not sure whether this one will or not, but I am on the lowest dose so maybe a stronger dose might help. So far I am not having any bad side effects. That is amazing on its own. Most medications cause some reactions, but I am not noticing anything different so far, but it isn’t working yet either. I am still in a major flare-up of both.

Now the last 2 mornings I have gotten up in the morning around 7 to 8 AM which for the last 2 months or so I have been in bed non-stop and barely able to get up for more than an hour or more during the day. So maybe this is starting to work a little bit on the Chronic Fatigue at least.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Chronic Fatigue Syndrome & Dizziness Problems With Balance and Fainting


Chronic Fatigue Syndrome & Dizziness

Problems With Balance and Fainting

This is a problem for me and has worsened lately. I try to stand up and besides the pain, I am off balance and wobble and am afraid I will fall at first until I balance myself. This could also explain the extra falling and the feeling that I had fainted. I have been hospitalized several times with the syncope (fainting). They can find nothing to explain it. The Chronic Fatigue is not mentioned as a reason.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Exercise for Fibromyalgia and Chronic Fatigue Syndrome – Feeling Better vs. Feeling Worse


Exercise for Fibromyalgia and Chronic Fatigue Syndrome

Feeling Better vs. Feeling Worse

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I think this is what started this severe case of pain a year and a half ago. I joined the gym for Silver Sneakers which was free with my Aetna Medicare (other medicare advantage plans carry it too, check yours). It was supposed to be for seniors so I figured it would be really easy. It wasn’t and all they did was make sure everyone had a chair just in case they needed it.

By the 6th week, I was in intense pain. I hadn’t gotten used to exercising at all. That worried me a bit and then I lost feeling on the whole left side of my body and ended up in the hospital with pinched nerves in my neck and back. It aggravated my degenerative disc disease and arthritis as well. It had been about 7 years since I had gone through the whole thing before only now things have degenerated more,

It has been a year and a half and I am just getting worse rather than better. I am now taking the only Fibromyalgia medication I never tried before, Lyrica. I am in major Fibromyalgia and Chronic Fatigue Syndrome flares. Life sucks and I have to pretend that all is well. the Chronic Fatigue has me in bed almost 24 hours now. I get up shortly and right back to bed and I am out like a light. I can’t do anything.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Fibromyalgia, Pain and Dementia


I am set to have my hip injected on Tuesday which means no NSAIDS for 5 days before. So since arthritis is pretty much throughout my body it is throbbing from that.

The stress of having that injection (no sedation but a local) has my Fibromyalgia also throbbing. All the pain points hurt and heaven forbid I want to scream each time they touch each other or some other object.

Then to add to that is my dad and his condition especially his dementia. My sister called me yesterday morning to warn me not to visit. She walked in there and he screamed at her to get out and go home. The place is dangerous and he didn’t want her there and a lot more. If he had done that to me I would have burst into tears and been frozen in my spot. My sister said she tried to talk him out of it, but he was simply lost in his dementia and like my mom was full of conspiracy theories. My mom thought my dad was trying to kill her and I was the only one she trusted and I would sit with her during these episodes so she felt safe, but my dad is sure the aliens he was studying about prior to his dementia are out for him and that my sister and I are not safe visiting him. She said that was the worst episode she has witnessed so far. I don’t go that often anyhow due to the long walk from the parking lot to the door, down a long hallway and then down another very long hallway. I can’t walk that far without numerous breaks. He doesn’t like visitors anyway and has no sense of time so he doesn’t protest and in fact he is happier we don’t come because he is so sure that we are being brought in for the kill. It upsets him more than makes him feel better.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Question: Can I Keep Working with Fibromyalgia or Chronic Fatigue Syndrome?


Question: Can I Keep Working with Fibromyalgia or Chronic Fatigue Syndrome?

For me, the answer to this was a resounding no. My job, was not physical, but it was mental and the “Fibro Fog” inhibited my ability to think, multitask and learn new things easily. I also had other physical conditions and it was necessary for me to go out on disability. It has been 8 and a half years ago now.

Anyone who has tried to live on government disability knows it is not easy. My pain and mental problems are difficult to deal with, but there is no choice as it is not curable and in my case none of the treatments tried have worked.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com