Tag Archives: Pain

Fibromyalgia, Pain and Dementia


I am set to have my hip injected on Tuesday which means no NSAIDS for 5 days before. So since arthritis is pretty much throughout my body it is throbbing from that.

The stress of having that injection (no sedation but a local) has my Fibromyalgia also throbbing. All the pain points hurt and heaven forbid I want to scream each time they touch each other or some other object.

Then to add to that is my dad and his condition especially his dementia. My sister called me yesterday morning to warn me not to visit. She walked in there and he screamed at her to get out and go home. The place is dangerous and he didn’t want her there and a lot more. If he had done that to me I would have burst into tears and been frozen in my spot. My sister said she tried to talk him out of it, but he was simply lost in his dementia and like my mom was full of conspiracy theories. My mom thought my dad was trying to kill her and I was the only one she trusted and I would sit with her during these episodes so she felt safe, but my dad is sure the aliens he was studying about prior to his dementia are out for him and that my sister and I are not safe visiting him. She said that was the worst episode she has witnessed so far. I don’t go that often anyhow due to the long walk from the parking lot to the door, down a long hallway and then down another very long hallway. I can’t walk that far without numerous breaks. He doesn’t like visitors anyway and has no sense of time so he doesn’t protest and in fact he is happier we don’t come because he is so sure that we are being brought in for the kill. It upsets him more than makes him feel better.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Pain doctor can be problematic with narcotics.


I was there on Wednesday and she told me that she had electronically sent it through and I could pick it up on the way home. (They now send them electronically just like regular scripts).

I didn’t go as the weather was just so bad I wanted to just get home. So the next day after a doctor appointment I stopped at the pharmacy. No prescription so I called from there. I was told by the office that the prescription hadn’t gone through and the doctor would send it later. I asked them to do it now since I was already in the pharmacy. NO! Okay so as life would have it on Friday I forgot. By the time I remembered it was past closing time. So this morning, Saturday, I called the pharmacy before leaving, still no narcotics prescription. So I called the doctor’s office to leave a message with the answering company.

Now I just remembered that last month I had taken Morphine for a week and then switched back to percocets because it didn’t work. So when I looked at the prescription bottle it was dated 2/8/19. So they wouldn’t have filled it back then anyhow. I wondered why I had so many left that I wasn’t close to running out. So the prescription still should have gone through and they would have held it to the 8th and filled it then.

BUT they still screwed up so another call to the doctor on Monday. I go through some kind of problem every month with them although this one was partly my though since I didn’t realize I had the wrong date. I was used to every 30 days and that week of Morphine messed me up.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Question: Can I Keep Working with Fibromyalgia or Chronic Fatigue Syndrome?


Question: Can I Keep Working with Fibromyalgia or Chronic Fatigue Syndrome?

For me, the answer to this was a resounding no. My job, was not physical, but it was mental and the “Fibro Fog” inhibited my ability to think, multitask and learn new things easily. I also had other physical conditions and it was necessary for me to go out on disability. It has been 8 and a half years ago now.

Anyone who has tried to live on government disability knows it is not easy. My pain and mental problems are difficult to deal with, but there is no choice as it is not curable and in my case none of the treatments tried have worked.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Possible narcotic withdrawal


This month we tried morphine as the percocets didn’t seem to be working. After a week it was painfully evident that the morphine was not going to be the better choice. I went back to the dr yesterday and asked for the percocets again. I had to turn in my remaining morphine pills and was told that was all I needed for the insurance to cover the second prescription in 30 days.

Well they didn’t send it. And so I left a message for the drs nurse and she must have sent the script, but she didn’t add the note that they confiscated my remaining morphine so the insurance is refusing to fill it. The pharmacy will call tomorrow and see what they can do and it will probably be between the dr and the insurance company, but in the meantime I am going to run out of the few percocets I have remaining.

I have been taking these for about a year and a half so I gather I am probably hooked on them and besides I need them for the pain.

Thanks to the people who abuse pain medicine those of us who need them have issues sometimes getting them and face possible withdrawal. The pain is bad enough without having to fight for the right to get the medication I need.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Tripping over one’s own feet!


Last night I tripped and landed on my hands and knees on my concrete floor that is covered with a very thin carpet with no padding underneath. Once recovered from the shock of the fall I sat there in pain and not able to move at first. Eventually it started to become less painful, but I can’t get up off the floor without help. I was able to reach my walker and pulled it to me, but it wasn’t strong enough to pull up on so then I tried the heavy coffee table that was in the area, I drug myself over and then spent what felt like hours trying to pull myself up on the table. I finally felt myself get a grip and I pulled myself onto my terribly bruised knees and then pulled myself up trying not to let go. I made it eventually.

Now today I am in a  lot of pain and not just the knees from slamming into the floor, but the rest of my pain ridden body.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Changing pain meds – JusJoJan #31


January 31, 2019 #JusJoJan Wrapup

I have been on Percocets, high dose and not much relief.

After talking to my pain management doctor we have decided to try Morphine which is supposed to be stronger. I haven’t started yet so I don’t know for sure, but hope to start tomorrow. There was an issue with the dose (smallest) not being available. After much debate from the doctor and asking me if I would be willing to cut the next dose up in half we are going to hopefully have it for tomorrow.

This is also an experiment as supposedly I was allergic to Morphine according to the ER. I told the dr and she said the IV brands are much stronger and they probably overdosed me to begin with which she did as she was going to help me for the pain in the next few hours. I hope this works as I didn’t like being allergic to the Morphine. Ambulances can only use Morphine around here and if I were to be unconscious Morphine is the pain reliever they use. Granted I wouldn’t feel it most likely if I were unconscious.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Chronic Pain – So tired of it!


It has been 2 months since they deadened the nerves in my back. It was supposed to take only 6, maybe 8 months til it worked. It hasn’t although it does occasionally give me a small period maybe even a day without major pain. Nothing they do seems to help me. I am so tired of this chronic pain. It doesn’t give me much of a life, but what can I do but live with it.

I am trying to do things to take my mind off of it. I joined a book club, joined overeaters anonymous and go to bingo once a week. I am also reading more besides the book I have to read for the book club.

I haven’t felt much like writing though and my blogs are just sitting here.

Tessa

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com