Problems Showering With Fibromyalgia and Chronic Fatigue Syndrome


Problems Showering With Fibromyalgia and Chronic Fatigue

Syndrome

I find showers difficult and painful. Just the physical pain from climbing into the bathtub is too much. I have to hold onto both handles and sometimes I have to let go and literally lift my leg up and over the side of the tub. Everytime I shower I wish I had a shower stall. I can’t use the tub and take a bath because I can’t sit down in there and then get back up. I used to love to lie back and soak in a hot bath. I can’t do that anymore and haven’t been able to for at least 14 years.

Most of my washing up consists of baby wipes with a shower once or possibly twice a week depending on my pain or exhaustion.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

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Morning Symtoms of Fibromyalgia


Morning Symtoms of Fibromyalgia

Some interesting info.

Tessa

Boredom – I know this is my problem and I need to find something to do!


Boredom seems such an easy thing to fix. It should be. Find something you like to do and do it. Simple isn’t it? I think it has to do with the depression from my Bipolar. My mood stabilizer calms down the mania, but leaves me feeling depressed. Things I loved, I could care less about right now.

Recently I found “Grey’s Anatomy” on Netflix. There are 14 seasons with roughly 24 episodes per season. Since I don’t have cable I would search for things to watch.

The other day I bought an antennae that works on my tv and gives me free local channels. I even found stations with old game shows and the old tv shows. I have the local channels unfortunately only have the 2 and it doesn’t seem to include the channel “Dancing With The Stars” is on. The antennae works but it seems like I have to reset the antennae every day or so as something changes. I end up moving it or the tv around til it clears up. Of course this will also raise my electric bill I am also sure. I don’t know how much.

I am trying to get back into reading. I used to read 7 or more books a week, now it takes weeks or months to read one.

I have all these adult coloring books and a huge box of Crayola Crayons. I bought them when I went through a faze where I wanted to color. That didn’t last long.

My writing is currently on hold. I can’t wrap my mind around it right now.

A lot of my time is currently visiting my dad and having a conversation that goes from interesting and making sense and then he will say something that he will insist is true although it doesn’t seem possible. My sister finally told him that no matter his progress he will not be driving any more. We expected a fight on that one, but he is accepting the loss of driving as necessary and he says he has had to give up his modesty so they can help him. Now he understands how my mother felt when she had to give up her independence and depend on him although in her case it was her husband mainly and then near the end my sister and I. My sister and I are not comfortable with having to possibly have to take care of his private, intimate parts. That is our dad and my mom would have been one thing, but our dad, well we will have to wait and see what happens and where he goes.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

We all have our crosses to bear. (not religious)


This saying came to mind when I was feeling sorry for myself. I was talking to my sister and after we bared our souls I mentioned that we all have our own crosses to bear. What seems so terrible to me may mean something else to someone else. To me my life sucks and yet when I think about it I know there are others much more worse off. Truthfully that doesn’t make me feel better.

I am in constant pain (chronic for most of my life, even as a child), I have mental issues and though I sort of have my Bipolar under control there is still depression hanging around. Anxiety is raising its ugly head. Stress is also a tremendous pressure and I am in constant worry about my dad and his stroke. Not only do we have to keep him in good spirits, work with his fading memory, and deal with the constant paperwork as we move along this journey.

We just found out that the facility we moved him to for subacute rehab doesn’t have room for him for the 100 days Medicare will pay for. We misunderstood. So if he is improving and needs more subacute rehab care we will have to look for a new facility that will have enough time for whatever amount of time he has left with Medicare and also long term care as well. We can’t afford to have someone come in 24/7, but depending on the amount of care he will need we might be able to keep him in his home with some help. I don’t work, but can’t physically do a lot of lifting and stuff like that. Making sure he eats, trying to keep the house somewhat clean are a possibility if that is all he needs. We could see about meals on wheels or whatever that program is called here. That would be one meal dealt with.

Right now everything is up in the air. We can’t plan anything yet until they assess where he is medically. We were told to apply to Medicaid so it is in place if he has to go to a nursing home. Everything will be sold and then Medicaid would kick in, Where he is at now is $10,000 a month. He is not eligible for assisted living. They require 2 full years of the monthly payment in advance and that amount depends on the level of necessary care. Not an option.

I figured out how to hook up this special antennae to my tv that will pick up the free channels within a 40 mile radius. No cable shows, but I can watch tv now. I even found a game show station. I was happy to see that “So You Think You Can Dance” is one of the channels. There is also an old show channel. Still exploring.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Fibromyalgia – 7 Things You Need To Know About Supplements


Fibromyalgia – 7 Things You Need To Know About Supplements

So many people assume that if someone mentions a supplement is natural that it is a good thing to take. This is so not true. Read the article if you are thinking about natural supplements. They might work for some people just like some medications will work for some people, but you can have serious side-effects from a natural supplement. It is not the be-all end-all of healing something.

Melatonin is a natural sleep aid. Works for some. Even works on my young grandson, but I can’t take it. It makes me extremely hyper and forget the sleep part.

Trial and error and only try one at a time to see how it affects you.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Life after a stroke from a daughter’s perspective.


I can’t possibly imagine what my dad is going through. He survived the main stroke plus multiple mini-strokes before it. At first we were astonished at what he was able to remember. We just passed the 4 week mark and he is going downhill and then uphill and then down again over and over.

Everybody is still talking as if he is going home. I participate, but having trouble really believing it. His memory is getting worse. If he goes home he is going to need someone there with him. None of us including him, my sister or I have the funds for a 24 hour nurse. Will he get well enough to just need someone to check in on him during the day. I doubt there are funds for that either. What if he tries to cook for himself. He will want to drive. I can’t see either of those happening.

They gave him a goal of 4 to 5 weeks to see what is going to happen next. Maybe he will surprise us and make a grand recovery. Not impossible, but highly unlikely. This is a hard time to go through. Not knowing what he will be capable of. I know they have no idea at this time and they did say that he is moving forward so there is possibilities that his recovery might be better than we originally thought. We have days when he doesn’t want to live although I have noticed those thoughts are not being expressed as often as they were in the beginning. He is doing what they ask him to do. He is just going with the flow because that is what they are telling him to do and we told him that he has to listen to the doctors and do what he is told.

Him having a stroke never really crossed my mind. I am not familiar with strokes and I always thought it would be his heart giving out. He had two heart attacks at the ages of 59 and 61. Now he is 86 and his heart is essentially fine. He could stroke out again and they watch him for any signs of that happening.

Hard being strong and putting on the strong personna and not letting him or anyone know how scared I am of this whole thing.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Crazy Sleep Cycles


All my life I have dealt with irregular sleep cycles. There is no rhyme nor reason to them and no predicting them.

If I don’t have plans during the day I don’t care what hours I sleep because I just sleep when I am tired. However with all the doctor appointments and the visits to my dad at the rehab facility I don’t know when I will be sleeping. I am taking naps whenever there is free time as I am feeling so drained and exhausted. It could be partly due to the meds I am taking although they tend to change over time so I can’t pin it to a specific medication.

If I lie down and I am not ready to drop off to sleep my brain just goes round and round and the racing thoughts drive me crazy. This is due mainly to my bipolar disorder. Also due to my fears that something is going to happen and so it runs through my mind non-stop. When I do get to sleep I usually suffer from nightmares. Horrible ones at that. If I sleep more than an hour or two at one time I am usually shocked since that is not normal for me. If I sleep for more than 6 hours straight it is even worse because there are more bad dreams and I am confused when I wake up.

Sometimes I just watch the clock go around and around and around. That is pretty bad also. And I usually fall asleep just before the alarm is set to go off. Nothing helps me get to sleep anymore. I take it when I can get it.

Tessa – advocate for mental health and invisible illnesses, also devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work), new work is on this blog http://www.tessacandoit.com