Exercise for Fibromyalgia and Chronic Fatigue Syndrome


Exercise for Fibromyalgia and Chronic Fatigue Syndrome

I am going through this right now as I am doing physical therapy per my pain management doctor’s orders. In the first three weeks I thought I was going to die. It took two days to get over the intense pain and fatigue. I was only doing 2 days a week and for less than 30 minutes. Now I can do the original program and they added a few more exercises in.

Thursday, July 9th, I am getting my second injection on the other side of my spine.

I also have a back brace that doesn’t fit me right as I am short-waisted. The woman who ordered it, insists I am doing it wrong. I doubt it, but someone is supposed to show me on Thursday so we will see.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Thankful Thursdays – Please Join Me – 7/2/2020 – #4


If anyone wants to join me and post what they are thankful for, please either create a post on your blog and put the link in the comments or just post in the comments.  You can use my logo in your post. If I get some interest in this post I will see about getting a new logo for it.

I am a few days late for this one since I have been busy with my novel for NaNoWriMo.

I am thankful for:

–A roof over my head

–Food in my belly. (One meal a day is provided by Medicaid. So my food budget has decreased).

–Family, Friends, and Neighbors who care what happens to me.

–My 88-year-old dad is now positive for the virus, but he is asymptomatic and showing no symptoms of the disease so far. Thank God! No update on his status as yet.

–Social Security and Medicare are still intact. (There is talk about there not being money to fund Social Security, Medicare and Medicaid due to this pandemic’s financial drain on society.) I don’t even want to think about what would happen to me if something happens to them. You think you are set and something is bound to happen. 

–I have applied for charity care for my hospital bill from the end of January that was 10 days long. Resent new paperwork and copies and a new signed application. I got a phone call that it had been received and should be processed in the next 30 days. I believe she was telling me it had been approved, but it would take a while to take effect. 

–I have received a back brace from my pain management doctor. It doesn’t fit me well since I am short-waisted and have a large bust. It took a while to figure out how to put it together and to put it on, but my back is actually in more pain from wearing it. Don’t know if I am doing something wrong or it just isn’t going to work due to fit. Not to mention I can’t wear my insulin pump the way I had been. I had to put the infusion set on my thigh now rather than my stomach as the tightness of the back brace cuts off the insulin where it was on my stomach. It also means I have to have a pocket to carry the pump in since I can’t clip it on my waistband like I usually do. It is causing me a lot of trouble and not sure if it is a help or not. It has only been one day so I will find out more as the days go by.

–I still have 2 days of physical therapy left. I am in less pain and able to do the exercises now and they have added some new ones.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

 

Multiple Chemical Sensitivity in Fibromyalgia and ME/CFS


Multiple Chemical Sensitivity in Fibromyalgia and ME/CFS

I have a major problem with perfumes, heavily scented soaps, and strong candles (like Yankee Candles). The smell of gas doesn’t bother me, although it can be unpleasant to smell. These issues started after I worked for 8 years in a factory that exposed us to high levels of chemical smells from melting plastic.

I don’t use many cleaning products so not sure if they are an issue or not. The ones I use don’t bother me much.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Thankful Thursdays – Please Join Me – 6/25/2020 – #3


If anyone wants to join me and post what they are thankful for, please either create a post on your blog and put the link in the comments or just post in the comments.  You can use my logo in your post. If I get some interest in this post I will see about getting a new logo for it.

I am thankful for:

–A roof over my head

–Food in my belly. (One meal a day is provided by Medicaid. So my food budget has decreased).

–Family, Friends, and Neighbors who care what happens to me.

–My 88-year-old dad is now positive for the virus, but he is asymptomatic and showing no symptoms of the disease so far. Thank God! No update on his status.

–Social Security and Medicare is still intact. (There is talk about there not being money to fund Social Security due to this pandemic’s financial drain on society.)

–I have applied for charity care for my hospital bill from the end of January that was 10 days long. According to the woman I talked to, I should qualify, otherwise, it will take them a long time of payments for that to get paid. Still waiting on their decision as the paperwork I sent along with my application has disappeared. Resent new paperwork and copies and a new signed application.

–I had my first injection in the left side of my spine and on July 9th they will do the right side. Feels a little bit better right now, but still too early to tell for sure. Still very stiff in the morning when I first get up.

–$30 in free fresh produce certificates have arrived.

–I also qualify for a cooling discount on my electric bill plus help from the state. There are programs for low-income people just have to find out what and where they are.

–I got my free fan for senior citizens with low income.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

 

Thankful Thursdays – Please Join Me – 6/18/2020 – #2


If anyone wants to join me and post what they are thankful for, please either create a post on your blog and put the link in the comments or just post in the comments.  You can use my logo in your post. If I get some interest in this post I will see about getting a new logo for it.

I am thankful for:

–A roof over my head

–Food in my belly.

–Family, Friends, and Neighbors who care what happens to me.

–My 88-year-old dad is now positive for the virus, but he is asymptomatic and showing no symptoms of the disease so far. Thank God!

–Social Security and Medicare is still intact.

–I have applied for charity care for my hospital bill from the end of January that was 10 days long. According to the woman I talked to, I should qualify, otherwise, it will take them a long time of payments for that to get paid. Still waiting on their decision as the paperwork I sent along with my application has disappeared.

–Medicaid which pays for an aide to help me bathe and dress, clean my apartment, do my laundry, and cooks breakfast and lunch. She also makes and changes my bed and does the laundry. Plus she takes my trash and recyclables down.

–Medicaid pays for my LifeStation Medical Alert Button monthly. It provides my incontinence supplies and provides me with one free meal every day.

–I had my first injection in the left side of my back and on July 9th they will do the right side. Feels better right now, but still too early to tell for sure.

–I got the call today telling me that I still qualify for the $30 in free fresh produce. I should receive the certificates in a couple of weeks.

–I also qualify for a cooling discount on my electric bill plus help from the state. There are programs for low-income people just have to find out what and where they are.

–This coming Wednesday they are giving Senior Citizens free fans. I plan to be there to get mine. I qualify.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

 

Orthostatic Intolerance and Low Blood Pressure


Orthostatic Intolerance and Low Blood Pressure

This is related to the last article I posted. The doctors used the word orthostatic Intolerance many times when I went in due to falling. They feel I had a sudden drop in blood pressure and that caused the falling. It was also attributed to the time I lost my eyesight briefly and couldn’t see for a short period of time. It did come back thankfully.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Chronic Fatigue Syndrome & Dizziness


Chronic Fatigue Syndrome & Dizziness

This is a big issue for me. I have terrible balance problems and Dizziness (also Vertigo) and I have been told that I must use a walker at all times. I have also passed out and woken up to find myself on the floor, on top of a side table that broke under me and hurt like hell and in other crazy situations. They can’t find a medical cause for this. However, this study seems to fit my condition. I have both Fibromyalgia and Chronic Fatigue Syndrome. I will fall asleep just sitting here on the computer. I used to fall asleep at work on my computer as well. When it gives me a warning I lie down so I don’t fall.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

June 17, yesterday, I had a steroid injection.


I have a new pain doctor and he is still doing procedures whereas my old doctor stopped doing them. Now I see this new doctor and he doesn’t waste time. I had an injection in the left side of my back yesterday and on July 9th I will have the right side done. Too soon to see how it will work. Right now I am in less pain, but the first 3 days can vary back and forth and it takes 3 weeks to get the final results on whether it has helped or not.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Covid-19 Strikes Home


Until 2 hours ago I was able to say that I did not personally know anyone with the virus. Then my sister called to say that our dad (in long term care/nursing facility) has now tested positive for the virus. He is asymptomatic and feeling fine. This brings the total of residents with it to 146 and 12 positive employees. 66 of the positive residents are now recovered. They are required by the state to test weekly.

I don’t know much about the asymptomatic cases, but I hope that means he will not get sick himself, he is just a carrier. So far he is fine and a large majority of their cases have been asymptomatic. This makes me wonder just how many people out there are running around spreading the virus because they don’t know they have it. For all I know I may be asymptomatic myself. How many of these loud-mouth know-it-alls who want to reopen the country and stop wearing masks are out there helping the virus to spread? You don’t have to have actual symptoms to be a carrier.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg

Language Impairment in Fibromyalgia and CFS


Language Impairment in Fibromyalgia and CFS

This particular part of Fibromyalgia and Chronic Fatigue Syndrome is often quite embarrassing. I worked in a call center and I would suddenly stop as my mind went blank and the simplest words would not come. Now I am making youtube videos and I run into the same problem. I either leave it there if it is a simple and quick fix or I just have to start recording all over again.

The words I forget can be as simple as the word cat. They are not usually long words which you might expect to be a problem. No something as simple as cat can trip me up.

Tessa – 

Advocate for mental health and invisible illnesses

New Author’s Website – http://www.tessadeanauthor.com

Author – Old Writing –  http://www.finallyawriter.com

About my life –  http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

I am also a youtuber in the authortube section on writing. See my videos here:  https://www.youtube.com/channel/UCSpNS-6gfJ0s8eD1berLwQg