Category Archives: Chronic Fatigue

Language Impairment in Fibromyalgia and CFS


Language Impairment in Fibromyalgia and CFS

https://www.verywellhealth.com/language-impairment-in-fibromyalgia-cfs-716024?utm_campaign=list_chronicfatigue&utm_medium=email&utm_source=cn_nl&utm_content=19764760&utm_term=

I hate when this happens as it is so embarrassing. My last job before I went on disability was in a call center. I would suddenly stop while talking to the customer and stumble over words trying to tell them what I meant.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Fibromyalgia Pain From Clothing and the Coronavirus


Fibromyalgia Pain From Clothing

https://www.verywellhealth.com/fibromyalgia-clothing-pain-715962?utm_campaign=list_chronicfatigue&utm_medium=email&utm_source=cn_nl&utm_content=19659601&utm_term=

I quit wearing a bra and I am large chested, but it is just too uncomfortable and I rarely go out in public and if I do, tough bananas!

I only dress for the outside on the few occasions I leave my house and that is even less now that the coronavirus is all around me. People in my building are sick. We’re only allowed in the lobby if we are leaving, getting our mail or going to the laundry room. They closed our community room and stopped all our activities. No standing or stopping in the community areas. I am surprised they still let us get on the elevators together. Someone in management was overheard saying that will all that is going on here that they should shut the building down. Well, the law says you aren’t allowed to evict anyone from their living spaces in the time of this virus. At least around here. They can’t cut off your utilities either for non-payment and so many people are out of work right now. We have an 8 PM curfew. If you are on the roads after that you had better have a really good reason. The number of cases in my state is rising rapidly. I don’t know for sure how many people in my building are sick, but I am aware of 2. It is like a ghost town around here. Supplies are hard to get. I managed to stock up on food and water at least. As long as they don’t shut down the electric. They can’t cut us off for non-payment but if the grid goes down there’s nothing we can do and then I have a problem. I do have a good bit of water though.

Oh, and the doctors offices are either shutting down, using the phone and video chats, making you call inside to be told when you can enter the building so you are waiting in your car not the waiting room and in one I had my temperature taken before I was allowed to enter and all non-essential appointments are canceled.  There is no furniture in the waiting room so they don’t have to keep wiping it down. Weird experiences for sure.

My pain doctor is giving me less and less pain medication and I can barely stand it. And she isn’t seeing patients so I couldn’t even plead my case. I am furious with her.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

A couple of weeks until NANOWRIMO camp writing session.


I have been trying to remember my childhood as that is the portion of my memoir I plan on working on at this session.

I am not doing much right now as I am in serious pain and pain doctor will not give me the strong medicine I need due to my accidental almost overdose. It was a freak accident and nothing else is working so I don’t do much, but sit around or lie around or cry. Lots of crying going on here.

My life really sucks right now. I thought it was bad before, but this is the worst imaginable pain and nothing I can do about it. I can’t imagine living another 20 years or so with this pain and it is only going to get worse. Whoever heard of Degenerative Disk Disease that reverses and goes away. No one I know of. The arthritis won’t go away and neither will the Fibromyalgia and now because of a stupid freak accident, I can’t have pain medicine.

And now we have this coronavirus nonsense going on and they are shutting everything down where people can get together in groups more than 10. They shut our day room down so no more activities till something changes. The grocery stores have nothing in them. I can’t even get my medicines that have to be ordered at this point. I am in NJ (USA), not Italy or China so I can’t imagine what it is like there.

God Help Us All!!!!!!!!!!!!!

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

5 Don’ts for a Better Relationship With a Fibromyalgia or CFS Doctor


5 Don’ts for a Better Relationship With a Fibromyalgia or CFS Doctor

These can be hard to follow when you are in a lot of pain. And some doctors are truly unsympathetic and don’t believe it exists.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Must use walker at all times


Doctor says I am a fall risk, duh! I was told to use the walker at all times and that included inside my apartment where I usually hobbled about. Finally getting used to it. I was leaving it all over the place LOL! Most of my falls, although not all of them have been in my apartment.

Started the application process for state aid (medicaid) and what a pain it is. Tons of paperwork. Designed to get you to quit most likely.

Pain management doctor took my Percocets away which I figured would happen. I was thinking of not mentioning what happened, but my daughters told me to tell her. What happened was serious. So she told me to cut them in half and she was going to prescribe Nucynta. Problem is the insurance company is fighting it. So I am in more pain because of the half of pill and if she doesn’t get it approved soon I am going to run out of them and I don’t know if the smaller dose would cause withdrawal or not. Of course, the doctor is not returning my phone calls. Even if I get the Nucynta I have to start out on a very small dose so don’t know how much pain relief  I might have anyhow. Chronic pain sucks.

My children have decided that it is too dangerous for me to live alone. Doesn’t leave a lot of options. None of them have room for me and that leaves long term care in a nursing home or assisted living, but that would be expensive since medicaid will cover the medical part, but not a living facility. And the nurse from medicaid that did my assessment agrees with my kids on the living alone part. I have lived alone exactly 3 years in my life total. The nurse is putting me down as needing help in many areas. Now just have to get through the medicaid part which can take months and constant requests for this or that paper. My sister just did it for my dad who is in a long term care facility for his stroke and dementia. This is a different program though.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Multiple Chemical Sensitivity in Fibromyalgia and ME/CFS


Multiple Chemical Sensitivity in Fibromyalgia and ME/CFS

I am very sensitive to different chemicals up to and including candles and perfumes. You know how some people douse themselves in perfume. It just about kills me trying to breathe through that. I have to avoid the candle stores and perfume sections of stores. I can’t tolerate the scents.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.

Post-Exertional Malaise Overview


Post-Exertional Malaise Overview

This is so very real and right now worse than ever. Change my bed and it will take a few days to get over it. Go for groceries and between the worsened pain and the malaise I am out again for days. I can’t clean my apartment. It just sucks the life out of you.

Tessa – 

Advocate for mental health and invisible illnesses, also a devout Christian

Author – http://www.finallyawriter.com (this blog contains my old work mostly although occasionally I do add something new here), new work is mainly on this blog http://www.tessacandoit.com

Author of a book, a work in progress on the blog, https://tessacandoit.com/government-property-a-memoir-as-a-military-wife/

Highlighted chapters are done and ready to be read.